I get up to naughtiness then get down to chores...………LovelyLadyLux wrote:Grey and pouring down rain today. Feel like going back to bed and sleeping the day away. Not overly cold but just looking out the window isn't too inspiring to get out there and actually DO something. Think I'll pour a second cup and mull over what I might want to get up to or down to today.
Actually do you 'get up to stuff'? OR do you 'get down to it?'
Ahhhh give the weather maybe I need to 'get over it'!
I have a good word for the NHS - well my Doctor at least. I had an appointment with him yesterday morning at 11.10am which was I estimated the earliest I would be mobile enough to go the 4 minute taxi drive to the surgery.
I don't see much of the doctors but this one got me into hospital and knees done as a priority. I had been told 17 years before that nothing but total knee replacement would help , and it was left at that. When I moved here, the first time I saw this doctor he spent a few minutes actually reading my notes - not something I had seen a doctor do before.
Now I've passed my sell by date, but I've got used to the inconvenience and felt blessed that it wasn't so much worse than it could easily have been. The range of symptoms I have been suffering over the last 45 years have been diagnosed as Relapsing Remitting Multiple Sclerosis, Limb Girdle Muscular Dystrophy and Ehlers-Danlos syndrome but each time I was told it's not likely to shorten your life, you seem to be making the best of it - carry on.
All of the above have similar symptoms, I might have any or all of them at least MS isn't hereditary and there is no doubt that Hypermobility or Ehlers-Danlos has affected my sister and her daughter, my cousin. my children and grandson. One difference I have is that from about 25years old I fell frequently and I have reduced movement owing to early onset arthritis - the hypermobility is a blessing then as movement is not so impaired. I also have spasms which I can't control - intense uncontrolled movement, which doesn't hurt, last long and I remain fully conscious and pretty unconcerned if I'm at home, but I always get severe/violent spasms when I come out of anaesthetic which worries the nurses.
I wanted to tell the doctor that I have several times had intense chest pain and been carted off against my will to various hospitals and clinics which find my heart is working very well indeed and no one knows what causes the pain. I don't want to waste time being checked if it happens again.
The doctor was kind, concerned and gently questioned and listened to me for nearly an hour. He checked my sugar -OK, BP-OK etc etc everything fine ........ but when he asked me to touch my nose with my left hand which was trembling more than the right, it went into uncontrollable spasms for a few minutes. The right hand was OK. (Next day it was the other way round.)
I really felt that he was interested and sympathetic - not that I need sympathy as it is, what it is and I am, and have been very very lucky.
I was about to delete the above, but felt as others have been kind enough to share, I'd leave it.